The Changing Face of Life-Limiting Prenatal Diagnoses: Clinical, Pastoral, and Ethical Considerations


Saturday, March 15  

8:30am – 4:30pm

Location:
Geddes Hall Auditorium, University of Notre Dame

Cost: $50 for physicians; $30 for nurses, midwives and other health professionals; $10 for diocesan/parish/pastoral ministers; $10 for parents, students and clergy

This daylong conference will bring together national experts to discuss new research concerning the diagnosis of Trisomy 13 and 18, concerns regarding the absence of accurate prognostic information available to parents when a prenatal diagnosis is provided, the impact of prenatal diagnosis on perinatal palliative care, and guidance regarding Catholic ethics. The program will also include a review of effective Trisomy 21 advocacy over the last fifty years, which has changed the medical landscape for those living with this syndrome, and best practices in trauma informed care. The day will conclude with a Q&A session with the presenters. Lunch will be provided.

Sponsors

About the Presenters

Dr. Donna Harrison

Dr. Robin Pierruci

Tracy Winsor

Dr. Mary O’Callaghan

Kellene Murdick, PCC

Kellene graduated from the University of Florida with a bachelor’s degree in nursing in 1996. She completed the National Catholic Bioethics Center’s Certification Program in Health Care Ethics and has a Graduate Certificate in Catholic Bioethics from St. Bernard’s School of Theology and Ministry.  

Kellene is the Parent Care Coordinator for Miriam’s Blessing, a position she began in August 2024. She trained as a PCC through the national organization Be Not Afraid. Her experience as a PCC began in Florida where she volunteered at Agape Women’s Center and helped with the implementation of Agape Cares, a prenatal diagnosis ministry affiliated with First Baptist Merritt Island. She relocated to Fort Wayne in March of 2024. 

Kellene is honored to serve the families within the Diocese of Fort Wayne-South Bend through Miriam’s Blessing offering a comprehensive case management support that is parent and baby centered. 

She is the mother of one daughter and has one grandson. Her own experience with a NICU admission provides insight for her ministry.

Mary O’Callaghan received her Ph.D. in psychology from the University of Notre Dame; her doctoral studies were funded by an NIH grant for research in developmental disabilities.

She has been a public policy fellow at Notre Dame’s de Nicola Center for Ethics and Culture since 2015, where she focuses on the ethical issues surrounding disability-selective abortion. She has testified before multiple state legislatures in favor of bans on these abortions, spoken at the United Nations about the international scope of abortion of children with Down syndrome, and is a regular faculty at Notre Dame’s Vita Institute, a formation program for leaders in the national and international pro-life movement.

Dr. O’Callaghan serves on the governing board of the National Catholic Partnership on Disability, where she chairs the Ethics and Public Policy Committee.  She has developed numerous pastoral materials on disability for the Catholic Church, and was a co-founder of Miriam’s Blessing, which provides support for families receiving prenatal diagnoses in the diocese of Fort Wayne/South Bend.

She is currently a visiting fellow in the Fiat Program on Faith and Mental Health at the McGrath Institute for Church Life at Notre Dame.

 She and her husband John have 5 children, including their youngest son, Tommy, who has Down syndrome and autism.

Tracy Winsor BA, MPA, is the co-founder of Be Not Afraid (BNA) a case management support service for parents carrying to term following a prenatal diagnosis. BNA has welcomed over 300 infants since its founding fourteen years ago, and Tracy has overseen all aspects of program management.

Tracy has presented and written extensively on the topic of prenatal diagnosis to include providing presentations for the U.S. Bishops, the American Association of Prolife OBGYNs, the International Association of Catholic Nurses, the Philadelphia Trauma Training Conference, and the Catholic Social Workers National Association. She also authored a chapter in the National Catholic Bioethics Center (NCBC) text, Catholic Health Care Ethics: A Manual for Practitioners, Third Edition, and in the summer of 2023 was featured in the National Catholic Bioethics Quarterly (Volume 3, Number 2) entitled “Recommended Revisions to the Ethical and Religious Directives.”

Tracy’s implementation of an online training program to support the development of BNA-modeled services is part of a national prolife collaborative addressing prenatal diagnosis.  The BNA model of care is unique in that it is parent-centered, research-based, and trauma-informed.

Tracy has been married to her husband, John, for thirty-eight years and is the mother of eight children and six grandchildren. Her own experiences of pregnancy loss, acute neonatal intensive care, and medical disability inform the insight she brings to the topic of prenatal diagnosis.

Dr. Robin Pierucci is a wife, mother, and neonatologist. She has a Master’s degree in bioethics, and has completed the National Catholic Bioethics Center certificate program.  This background dovetails with her research and ongoing concern for babies born at the edge of viability, for infants and their families affected by in utero drug exposure, and the myriad of ramifications resulting from an abnormal prenatal diagnosis.  She has multiple publications in peer and non-peer reviewed journals and has spoken around the country on a variety of perinatal and ethical topics.  Dr. Pierucci, a Jewish convert to Catholicism, has appeared on several programs aired on EWTN including, Women of Grace, The Journey Home, EWTN Live, and Pro-Life Weekly.  She has testified about the reality of fetal pain and the changing edge of viability.  Dr. Pierucci is a member of the Catholic Medical Association, an associate scholar with the Charlotte Lozier Institute and a board member of the American College of Pediatricians (ACPeds) where she is also the co-chair of their pro-life committee.

Dr. Donna Harrison is an obstetrician gynecologist who is the previous CEO, and current Director of Research for the American Association of Pro-life Obstetricians and Gynecologists, which has over 7000 members in the US and additional international members who do not use killing human beings as a therapeutic option.  

She is also the Chair of the Alliance for Hippocratic Medicine, whose principles include protecting the vulnerable at the beginning and end of life, seeking the ultimate good for the patient with compassion and moral integrity, and providing healthcare with the highest standards of excellence based on medical science.  The Alliance for Hippocratic Medicine represents over 30,000 medical professionals in the US and Canada.

Dr. Harrison’s peer reviewed publications include the selective progesterone receptor modulators mifepristone and ulipristal, as well as abortion mortality and morbidity.  Dr. Harrison is a Continuing Medical Education speaker internationally on these topics.   

Dr. Harrison has served as an adjunct professor at the University of Michigan Medical School in Ann Arbor Michigan and Trinity International University in Deerfield Illinois.

She is the mother of 5 children and 14 grandchildren.

 

Doctor: $50
ARNP/CNP/midwife/nurse: $30
Other medical staff: $30
Bereavement/parent care coordinator: $30
Diocesan/parish staff/pastoral minister: $10
Student/clergy/religious/parent: $10

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Schedule

Aug. 6, 2024 – 6:00 p.m.

Conclude the series with Holy Mass followed by a festive celebration with your new friends!

Holy Mass – 6:00 p.m.
St. Francis Chapel
University of Saint Francis
2701 Spring Street

Food & Fun – 6:30 p.m.
University of Saint Francis
2701 Spring Street
Parking entrance located off Leesburg Road

Sponsors

Miriam’s Blessing

de Nicola

McGrath

Contact:

Lisa Everett
[email protected]
574-234-0687